August 21, 2017

Charlie Gard dies in hospice, reports say

29 July 2017, 04:14 | Katie Chavez

Charlie Gard will be moved to hospice for final hours: Judge

A British judge is set to rule on where Charlie Gard a baby with a rare genetic disease will spend the last days of his

Charlie was diagnosed with a form of mitochondrial disease, a rare condition that causes progressive muscle weakness and brain damage at eight weeks old. Considered terminally ill, he also could not breathe unaided, see or hear.

His case moved from family tragedy to worldwide legal drama because of a disagreement between his parents and his doctors over his care.

Born on August 4 of a year ago, Gard's condition was discovered in September and he was admitted to the Great Ormund Street Hospital (GOSH) the following month, in October.

Unfortunately, we will never know the answer to that question.

The tot had been the subject of a long legal battle between his parents and Great Ormond Street Hospital, where he was being treated. They said that the doctors could withdraw life-support.

Under British law, it is common for courts to intervene when parents and doctors disagree on the treatment of a child. And that's exactly what happened. On March 13, the case was reviewed by the High Court, and a decision to remove the baby's life support was concluded after seeing chances of any treatment.

Their pleas for help gained worldwide attention, with both President Trump and Pope Francis offering support.

Earlier this month Columbia University Medical Center neurologist Dr. Michio Hirano offered to try a new experimental therapy on Charlie.

On Monday, July 24, Charlie's parents, Connie Yates and Chris Gard, announced that they had made the courageous decision to end their legal battle over treatment for their son.

Don't support ACA repeal
Yet the risk of losing coverage may appear manageable to people in good health who expect to have modest medical bills. Originally introduced June 26, it is now in its third version and is nearly certain to be altered further.

That debate will linger, as will the heartbreak and grief Yates and Gard must endure.

On July 24, Charlie's parents officially withdrew their application to take their son to the USA for treatment, ending their legal battle. A court denied their request to take him home from the hospital on Thursday, and he was instead sent to a children's hospice, according to the Guardian.

"We deeply regret that profound and heartfelt differences between Charlie's doctors and his parents have played out in court over such a protracted period", Great Ormond Street Hospital said in a statement, The New York Times reported. Mr Justice Frances made the order on Thursday afternoon, a few hours after the deadline passed for Charlie's end-of-life plan.

Charlie had required invasive ventilation - a treatment where air is forced into the lungs - that can "only be provided in a hospital setting" with specialized management from medical professionals, the hospital said.

Francis said Charlie's mother and father had accepted that the only options for their son "are the hospital or the hospice". "The priority of our medical staff has always been Charlie".

"We promised Charlie every day we would take him home".

His mother Connie Yates said amid sobs that "What if it was your child?"

"We only wanted to give him a chance of life", she said through tears.

Despite us and our legal team working tirelessly to arrange this near-impossible task, the judge has ordered against what we arranged and has agreed to what Great Ormond Street Hospital asked. He was 11 months old.

Other News

Trending Now

Home Health Groups Concerned After Senate Revives Health Care Reform
It's really entirely impossible to predict... exactly what amendments will be offered or what amendments will succeed. McCain added, "It's time we sat down together and came up with a piece of legislation that addresses this issue".

Trump goes after Jeff Sessions in morning tweets
We ask, why the critical tweets? But Republicans on Capitol Hill and conservative groups have stood by the attorney general. Rosenstein appointed Mueller after Trump abruptly fired James Comey as Federal Bureau of Investigation director in May.

WHO launches injection safety campaign for World Hepatitis Day
However, the organisation cites an irregular supply of test kits as one of the most commonly reported barriers to screening. As part of the World Hepatitis Day , it is essential to spend an hour on testing the HBsAg and HCV in infertility couples.

Princess Diana organised supermodel surprise for Prince William
The two brothers smile fondly over the pictures that their mother snapped, reminiscing over how much she loved taking photographs. William , now the Duke of Cambridge, was 15 and Harry 12 when their mother was killed in a vehicle crash in Paris in 1997.

All-New Rolls-Royce Phantom unveiled
Unless you are an avid follower of Rolls-Royce, you might not immediately recognize that this is an entirely redesigned model. Inside, the "Gallery" is Rolls-Royce's term for "a reinterpretation of a motor car's dashboard and instrument panel area".

What does the Democratic Party stand for?
A draft summary of the new Democratic policy agenda circulated Monday morning features a call for lowering cable television bills. We also failed to communicate our values to show that we were on the side of working people, not the special interests.

Trump's Transgender Ban Nod to Christian Conservatives
Before transitioning, she was Christopher Beck, a decorated 20-year veteran of the Navy SEALs, including the elite SEAL Team 6. In the spring of 2016, he invited transgender reality star Caitlyn Jenner to use whichever bathroom she chose at Trump Tower.

Netanyahu eyeing way to shut down Al Jazeera in Israel
Last Friday, a Palestinian youth stabbed to death three members of the Salomon family in the West Bank's Halamish settlement. Palestinians had fiercely objected to the measures introduced after the killing of two Israeli policemen.

Neymar's Teammates Weigh-In On PSG Transfer Rumours
Casemiro added that he hasn't had a chance to talk to Neymar but believes his worldwide team-mate will make the right decision. Semedo's arm goes around Neymar's neck and the pair jump all over each other before squaring up face-to-face.

Jordan, Israel at loggerheads over embassy shooting
Bashar Hamarneh, a doctor and the landlord of the building that houses the Israeli embassy , was also killed in the incident. Prime Minister Binyamin Netanyahu met with Ziv and other staff who returned from Jordan on Tuesday.